Written by Joanne on June 12, 2015
It is over 15 years since the Representation Agreement Act came into effect—its purpose was to reform the adult guardianship system.
This means reforming the health and social service systems from the ‘we know best’ approach to a person/patient-centered approach based on self-determination. It seems that changes in culture and practice are difficult for systems.
We are still waiting.
Nidus was invited to make a presentation to the Standing Committee on Health of the BC Legislative Assembly on May 15, 2015. Our recommendations focused on ways to improve best practices in end-of-life care. But the recommendations apply to all life areas: health care, personal care, financial and legal affairs—and all stages of life—from becoming an adult (age 19 in BC and when parental rights end) through to death.
Our focus is on ‘quality-of-life to the end-of-life.’
British Columbia has excellent legislation to enable planning, including for end-of-life care, however, the education and practice is dismal—making it difficult for people to make legally effective documents.
Clarity refers to consistency, accuracy and completeness of messaging and education across all sectors and disciplines. Without this, planning is not accessible.